22q Awareness Month: Sophia’s Story

22q Awareness Month: Sophia’s Story

November is 22q11 Deletion Syndrome awareness month. Also known as DiGeorge syndrome, this syndrome is one of the most common reasons for cardiac problems in babies. The condition is rare and before having daughter Sophia, heart mum Charlotte had never heard of the...
My experiences of being a heart dad

My experiences of being a heart dad

As well as being a heart dad, Tom was born with a heart defect himself. His family have recently been supported by Children’s Heart Surgery Fund as his daughter – heart warrior, Mia – was recently treated at the Leeds Congenital Heart Unit. For International Men’s...
Give A Bear Hug This Christmas

Give A Bear Hug This Christmas

Help us raise £5000 this Christmas to ensure every baby and child who has open heart surgery at Leeds next year receives a precious gift from CHSF – a Katie Bear teddy! DONATE On average around 500 babies and children have open heart surgery at Leeds every year....