Amanda Buckley is our Fundraiser of the Month for March – and here’s why!

Amanda’s eldest son Kayden was born with Aortic Stenosis, which is a narrowing of the aortic valve opening.

He had a Balloon Valvulotopsy at just 10 days old at Leeds General Infirmary – a procedure to widen the valve using a balloon catheter.

The Leeds Congenital Heart Unit has continued to care for Kayden over the past 9 years.

He still has a tough journey ahead of him and is now waiting to have the Ross Procedure – where the aortic valve will finally be replaced with Kayden’s own pulmonary valve (which will then itself be replaced).

Amanda told us the parent accommodation your support funds has been crucial to making their journey less stressful. She added:

Children’s Heart Surgery Fund have also made Kayden’s follow-up appointments more comfortable by having a fantastic waiting room, including the fish tanks which are a great distraction at difficult times.

Knowing that the money is also used to fund research posts and projects gives us hope on the future our child will be able to have.

Amanda says the areas funded by Children’s Heart Surgery Fund inspire her family to continue their fundraising efforts, especially since Kayden will continue to need his care in Leeds in future.

She told us about the positive social bonds formed by local fundraising, and discussed their latest endeavours:

Fundraising really brought our family, friends and community together. It is a great way to have some fun and  meet new people along the way.

Our latest fundraising event involved holding a raffle – all prizes donated by friends, family and our local community.

Not only did we raise a fantastic amount, we also raised awareness resulting in other people taking part in Wear Red Day and raising money for CHSF.

Kayden’s school Ewloe Green took part, our work, the local nursery, local pub and even Natwest Bank.

What’s really fantastic is that the family live in Flintshire, North Wales – geography was not a barrier to them getting involved!

We can’t thank Amanda, her family and friends, and all our supporters enough for their hard work in keeping our charity going strong well into our 30-year anniversary.

Feeling inspired by Amanda’s story? Why not take a look at our latest events: click here. If you’d like to share your story, please e-mail