With your support most children with congenital heart disease will grow up to become adults and lead full and active lives.

ABOUT CONGENITAL HEART DISEASE (CHD)

Congenital Heart Disease is a heart condition or defect that develops in the womb, before a baby is born.

There are different types of Congenital Heart Disease, a baby’s heart valves may not be properly formed or there may be holes between the chambers of their heart.

Ultrasound scans during pregnancy (usually at the 20 week scan), can be an effective way to detect a congenital heart problem early on, however, sometimes they are not found until after the baby has been born and in other cases, some conditions may not be discovered until the child is older or even an adult.

Because every child and condition is different, Congenital Heart Disease in babies and toddlers can have a range of symptoms. The most common symptoms include extreme tiredness, poor feeding, excessive sweating, rapid heartbeat, breathing problems, chest pain and a blue tinge to the skin. If you notice any of these symptoms in your child, you should seek medical attention.

In this situation, you may be asked to attend another scan with a specialist or referred to a fetal medicine unit, obstetrician or a specialist in cardiac or child medicine.

If a congenital heart condition is confirmed, you should be given a detailed description of the problem, information about any surgery that might be needed, and the overall long-term outlook.

If appropriate, specialist monitoring and care will be provided before, during and after the birth so that your baby can receive tests and treatment as soon as possible. Some heart conditions can now also be treated in-utero (in the womb) before the birth.

In this case, your child may undergo a physical examination and heart tests such as an ECG.

If the diagnosis is confirmed, they will be seen by a paediatric cardiologist, who will manage their care.

You should be given a detailed description of the problem, information about any surgery that might be needed, and the overall long-term outlook for your child.

Thankfully, for the majority of babies diagnosed with Congenital Heart Disease (CHD), their condition is a minor problem which either doesn’t need any treatment, or can be successfully corrected with surgery. Other conditions are more serious and sadly, some children do not survive.

However, thanks to advances in early diagnosis and treatment, most children will grow up to become adults and lead full and active lives.

Affecting almost one in 100 births, congenital heart disease is an umbrella term used to describe any heart condition or defect that develops in the womb,
before a baby is born.

There are many potential causes of congenital heart disease, however usually these are down to complications in the early development of a foetus. Family history and other conditions such as diabetes can slightly increase the chance of a congenital heart defect.

REAL STORIES

#WarriorWednesday: Raven

#WarriorWednesday: Raven

Written by heart mum, Ashleigh Short "When I was pregnant we found out that our precious girl would be born with coarctation of the aorta and that she would have to go through open heart surgery at only a few days old. This was the hardest thing we've ever had to deal...

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Fundraising in memory of Kathryn Bedford

Fundraising in memory of Kathryn Bedford

written by Kathryn's daughter Deborah Children's Heart Surgery Fund is close to our hearts as Millie (my daughter, Kathryn's grandaughter) was born with Tetralogy of fallot in September 2005.   It was then we were thrown into a whole new world that none of us...

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Real Stories: Sawda

Real Stories: Sawda

Sawda is six years old and lives in Bradford. She was born with a very complicated heart condition and has already had several open heart surgeries to save her life. Mum Attika tells us about Sawda's journey with CHD so far and how she has been helped by CHSF along...

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THANK YOU FOR YOUR SUPPORT

Your generosity can really mean the world to children and adults with congenital heart disease across Yorkshire and North Lincolnshire.
Whatever you can give will make a huge difference!

Suite D17
Joseph’s Well
Hanover Walk
Leeds
LS3 1AB

0113 831 4810
info@chsf.org.uk

Registered Charity Number: 1148359
Registered Company Number: 8152970