With your support most children with Congenital Heart Disease will grow up to become adults and lead full and active lives.
ABOUT CONGENITAL HEART DISEASE (CHD)
- WHAT IS CONGENITAL HEART DISEASE?
- HOW IS CONGENITAL HEART DISEASE DETECTED?
- IF CHD IS SUSPECTED AFTER YOUR 20 WEEK PREGNANCY SCAN...
- WHAT IS CHD IS SUSPECTED IN A BABY OR CHILD?
Congenital Heart Disease is a heart condition or defect that develops in the womb, before a baby is born.
There are different types of Congenital Heart Disease, a baby’s heart valves may not be properly formed or there may be holes between the chambers of their heart.
Ultrasound scans during pregnancy (usually at the 20 week scan), can be an effective way to detect a congenital heart problem early on, however, sometimes they are not found until after the baby has been born and in other cases, some conditions may not be discovered until the child is older or even an adult.
Because every child and condition is different, Congenital Heart Disease in babies and toddlers can have a range of symptoms. The most common symptoms include extreme tiredness, poor feeding, excessive sweating, rapid heartbeat, breathing problems, chest pain and a blue tinge to the skin. If you notice any of these symptoms in your child, you should seek medical attention.
In this situation, you may be asked to attend another scan with a specialist or referred to a fetal medicine unit, obstetrician or a specialist in cardiac or child medicine.
If a congenital heart condition is confirmed, you should be given a detailed description of the problem, information about any surgery that might be needed, and the overall long-term outlook.
If appropriate, specialist monitoring and care will be provided before, during and after the birth so that your baby can receive tests and treatment as soon as possible. Some heart conditions can now also be treated in-utero (in the womb) before the birth.
In this case, your child may undergo a physical examination and heart tests such as an ECG.
If the diagnosis is confirmed, they will be seen by a paediatric cardiologist, who will manage their care.
You should be given a detailed description of the problem, information about any surgery that might be needed, and the overall long-term outlook for your child.
Thankfully, for the majority of babies diagnosed with Congenital Heart Disease (CHD), their condition is a minor problem which either doesn’t need any treatment, or can be successfully corrected with surgery. Other conditions are more serious and sadly, some children do not survive.
However, thanks to advances in early diagnosis and treatment, most children will grow up to become adults and lead full and active lives.
Affecting almost one in 100 births, congenital heart disease is an umbrella term used to describe any heart condition or defect that develops in the womb,
before a baby is born.
There are many potential causes of congenital heart disease, however usually these are down to complications in the early development of a foetus. Family history and other conditions such as diabetes can slightly increase the chance of a congenital heart defect.
Alayna was born with multiple, life-threatening heart conditions. At just 8 months old, she had her first heart operation at the Leeds Congenital Heart Unit. Although this was a success, the doctors knew she would need a more complicated surgery when she was older....
Heart warrior ALFIE was only two days old went he was blue-lighted to Leeds after a routine check with his paediatrician. 11 months on, mum Kirsty tells us all about their family's stay in hospital during the pandemic and how Children's Heart Surgery Fund have been...
Sophie found out at her 20 week scan that her son Finley would be born with a life-threatening heart defect. Three years on, Finley is thriving and Sophie wants to tell their story to help other heart families like hers...Heart mum Sophie tells us about her son...
Some of the conditions that fall under Congenital Heart Disease include:
- Aortic Stenosis
- Coarctation of the Aorta
- Large Ventricular Septal Defect (click for video)
- Pulmonary Stenosis (click for video)
- Tetralogy of Fallot (click for video)
- Initial repair for Tetralogy of Fallot (click for video)
- Transposition Great Arteries
- Single Ventricle Circulation
- Pulmonary Atresia with Intact Ventricular Septum
- Hypoplastic Left Heart
- Tricuspid Atresia
- Double Inlet Ventricle
- Right Aortic Arch
- Pulmonary Incompetence and Pulmonary Valve Replacement (click for video)
Take a look at our animation showing the normal functioning of the heart and compare it to one of the videos in the list.
THANK YOU FOR YOUR SUPPORT
Your generosity can really mean the world to children and adults with congenital heart disease across Yorkshire and North Lincolnshire.
Whatever you can give will make a huge difference!
0113 831 4810
Registered Charity Number: 1148359
Registered Company Number: 8152970