With your support most children with Congenital Heart Disease will grow up to become adults and lead full and active lives.
ABOUT CONGENITAL HEART DISEASE (CHD)
- WHAT IS CONGENITAL HEART DISEASE?
- HOW IS CONGENITAL HEART DISEASE DETECTED?
- IF CHD IS SUSPECTED AFTER YOUR 20 WEEK PREGNANCY SCAN...
- WHAT IS CHD IS SUSPECTED IN A BABY OR CHILD?
Congenital Heart Disease is a heart condition or defect that develops in the womb, before a baby is born.
There are different types of Congenital Heart Disease, a baby’s heart valves may not be properly formed or there may be holes between the chambers of their heart.
Ultrasound scans during pregnancy (usually at the 20 week scan), can be an effective way to detect a congenital heart problem early on, however, sometimes they are not found until after the baby has been born and in other cases, some conditions may not be discovered until the child is older or even an adult.
Because every child and condition is different, Congenital Heart Disease in babies and toddlers can have a range of symptoms. The most common symptoms include extreme tiredness, poor feeding, excessive sweating, rapid heartbeat, breathing problems, chest pain and a blue tinge to the skin. If you notice any of these symptoms in your child, you should seek medical attention.
In this situation, you may be asked to attend another scan with a specialist or referred to a fetal medicine unit, obstetrician or a specialist in cardiac or child medicine.
If a congenital heart condition is confirmed, you should be given a detailed description of the problem, information about any surgery that might be needed, and the overall long-term outlook.
If appropriate, specialist monitoring and care will be provided before, during and after the birth so that your baby can receive tests and treatment as soon as possible. Some heart conditions can now also be treated in-utero (in the womb) before the birth.
In this case, your child may undergo a physical examination and heart tests such as an ECG.
If the diagnosis is confirmed, they will be seen by a paediatric cardiologist, who will manage their care.
You should be given a detailed description of the problem, information about any surgery that might be needed, and the overall long-term outlook for your child.
Thankfully, for the majority of babies diagnosed with Congenital Heart Disease (CHD), their condition is a minor problem which either doesn’t need any treatment, or can be successfully corrected with surgery. Other conditions are more serious and sadly, some children do not survive.
However, thanks to advances in early diagnosis and treatment, most children will grow up to become adults and lead full and active lives.
Affecting almost one in 100 births, congenital heart disease is an umbrella term used to describe any heart condition or defect that develops in the womb,
before a baby is born.
There are many potential causes of congenital heart disease, however usually these are down to complications in the early development of a foetus. Family history and other conditions such as diabetes can slightly increase the chance of a congenital heart defect.
Lily's story, told by dad, Richard "On the 10th May 1990 our second child, Lily Doyle, was born. She was quite frail and was sick after most feeds, but in our limited experience as parents (one other child at 18 months old) this was quite normal." This continued for...
With your help we have funded some special toy MRI equipment to help young patients. MRI research nurse Ruth Foley tells this very special “Because of You” story! Meet James! James is 6 years old and has Tetralogy of Fallot. Read his backstory here. James came to...
From: Leeds Mum: Claire CHD: Tetralogy of Fallot James was diagnosed with Tetralogy of Fallot at our 20 week scan. At 4 days old James was ready to have his tiny heart stented and he did not have a name. So before he went for his procedure we named him James. Dr...
Some of the conditions that fall under Congenital Heart Disease include:
- Aortic Stenosis
- Coarctation of the Aorta
- Large Ventricular Septal Defect (click for video)
- Pulmonary Stenosis (click for video)
- Tetralogy of Fallot (click for video)
- Initial repair for Tetralogy of Fallot (click for video)
- Transposition Great Arteries
- Single Ventricle Circulation
- Pulmonary Atresia with Intact Ventricular Septum
- Hypoplastic Left Heart
- Tricuspid Atresia
- Double Inlet Ventricle
- Right Aortic Arch
- Pulmonary Incompetence and Pulmonary Valve Replacement (click for video)
Take a look at our animation showing the normal functioning of the heart and compare it to one of the videos in the list.
THANK YOU FOR YOUR SUPPORT
Your generosity can really mean the world to children and adults with congenital heart disease across Yorkshire and North Lincolnshire.
Whatever you can give will make a huge difference!
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0113 831 4810
Registered Charity Number: 1148359
Registered Company Number: 8152970