FAMILY SUPPORT

At Children’s Heart Surgery Fund, we know that caring for people with congenital heart disease involves more than treating just the heart itself. It is so much more than that.

CHSF’s Family Support service is available to all cardiac families of patients in our region with congenital heart disease.

We can offer a range of practical, emotional, financial and sign-posting support for our families.

If you are in need of some help, guidance or reassurance, fill in our ‘Request for support‘ form below and a member of the team will be touch.

Alternatively, you can find contact details for the team at the bottom of this page.

MEET OUR FAMILY SUPPORT TEAM

Sarah Cherry

HEAD OF FAMILY SUPPORT

“I have been with CHSF since Oct 2020 and have enjoyed every second. I feel lucky to work with such an amazing charity and have already met so many inspiring patients and families, which makes my role so worthwhile.”

“We offer a range of practical and emotional support so if you are ever in doubt of what we can help with please get in touch. I am always happy to have a chat and answer any questions you may have, so please ask away!”

LUCY MCMAHON

FAMILY SUPPORT WORKER/YOUTH WORKER

“Before joining CHSF in November 2023, I worked in a family support role within the hospital, working with patients and their families. I have also completed a Masters in Family Support, with a focus on supporting families who have a child with an illness.”

“I support our families going through treatment. From a chat and a brew to advice and practical help, this assistance is there at a time of distress and anxiety. I am here to support young people through their transition in care”.

AMAN KAUR

FAMILY SUPPORT WORKER

“I am here to support you with whatever you need during your child’s hospital stay. This is a tailored service and the Family Support team at CHSF aim to meet the needs of each individual family.”

We have a dedicated facebook group to connect those in our region affected by CHD .

Join and find thousands of heart parents and patients living with congenital heart disease ready to offer advice and support. A safe space to build relationships.

We understand the importance of being close to your child while they are in hospital.

We have accommodation in the hospital for parents, providing comfortable space to rest and recuperate during what can be a very stressful and emotional time.

Coming into hospital with your child for treatment can be daunting.

Watch our video where Sarah in our Family Support team shows us around some key areas of the Leeds Congenital Heart Unit including wards, family accommodation and facilities.

Cardiac Cafe’s are events in your local area where parents of young cardiac patients and adult congenital heart patients can meet.

You will alos have the opportunity to chat to the Family Support team, as well as professionals from Leeds and across the network.

You may be able to claim Disability Living Allowance if your child has a heart condition.

If you are looking after a child with a health condition or disability under 16, they may be entitled to a benefit called Disability Living Allowance or ‘DLA’.

Did you know, we have animations of some of the more common congenital heart conditions?

These animations funded by Children’s Heart Surgery Fund show the heart’s normal working function, and how it is affected by common congenital heart defects.

Family Support Plans For 2024

Family Support Plans For 2024

2024 has brought a burst of energy and enthusiasm to Children's Heart Surgery Fund's (CHSF) Family Support Team. Sarah, Family Support Supervisor, accompanied by Lucy, our Family Support/Youth Worker, have shared their plans for the upcoming year. As we embrace the...

Relax & Recharge: Mindfulness Essentials for Heart Parents

Relax & Recharge: Mindfulness Essentials for Heart Parents

At CHSF, we know that caring for people with congenital heart disease involves more than treating just the heart itself. It is so much more than that. That's why Mindfulness Welcome Packs are now being given to families when they arrive on the children’s heart ward,...

Georgie shadows Lucy, Family Support Youth Worker

Georgie shadows Lucy, Family Support Youth Worker

written by Georgie Abbott “Ready, Steady, Go, Hello” is a national programme our CHSF Family Support Worker, Lucy McMahon, has been telling me we are working towards implementing to help our young heart warriors as they navigate their cardiac care pathways. And...

LEAVE US A MESSAGE

We always love to hear the positive impact of our family service and how you have been helped by the CHSF Family Support team. Leave your message for the team below.

Please note, this is not a request for support form. If you are in need of family support from CHSF please fill in our request for support form.

REQUEST FOR SUPPORT

CHSF’s Family Support service is available to all cardiac families and patients in our region with congenital heart disease. We can offer a range of practical, emotional, financial and sign-posting support to our families.

GET IN TOUCH

Sarah Cherry
Head of Family Support
07929 509227
sarah.cherry@chsf.org.uk

Lucy McMahon
Family Support Worker/Youth Worker
07933 185146
lucy.mcmahon@chsf.org.uk

Aman Kaur
Family Support Worker
07858 300769
aman.kaur@chsf.org.uk

You can also email familysupportteam@chsf.org.uk or call 0113 831 4810