Around 17,000 babies, children and adults with CHD are treated as outpatients by the Leeds Congenital Heart Unit every year
Around 17,000 babies, children and adults with CHD are treated
as outpatients by the
Leeds Congenital Heart Unit
Around 420 babies, children and adults with CHD from our region also need open heart surgery every year.
Experts in identification, diagnosis and medical/surgical treatment of congenital heart disease, arrhythmias and acquired heart disease, the unit provide fetal, child, teen and adult support services to a wide-reaching area.
The Leeds Congenital Heart Unit also provides screening services to large numbers of children in our region to exclude cardiac problems.
Clinics run by the unit provide non-invasive diagnostic investigations, including electrocardiography, 24-hour ECG tape monitoring and exercise testing together with a full range of radiography, haematology, biochemistry and microbiology services.
About congenital heart disease
Affecting almost one in 100 births, congenital heart disease is an umbrella term used to describe any heart condition or defect that
develops in the womb, before a baby is born.
There are many potential causes of congenital heart disease, however usually these are down to complications in the early development of a foetus. Family history and other conditions such as diabetes can slightly increase the chance of a congenital heart defect.
Some of the conditions that fall under Congenital Heart Disease include:
- Aortic Stenosis
- Coarctation of the Aorta
- Large Ventricular Septal Defect (click for video)
- Pulmonary Stenosis (click for video)
- Tetralogy of Fallot (click for video)
- Initial repair for Tetralogy of Fallot (click for video)
- Transposition Great Arteries
- Single Ventricle Circulation
- Pulmonary Atresia with Intact Ventricular Septum
- Hypoplastic Left Heart
- Tricuspid Atresia
- Double Inlet Ventricle
- Right Aortic Arch
- Pulmonary Incompetence and Pulmonary Valve Replacement (click for video)
Take a look at our animation showing the normal functioning of the heart and compare it to one of the videos in the list.
The Fetal Cardiology team at Leeds Children’s Hospital provides scanning and investigation services to pregnant women.
This team are experts in the identification and will support you through to birth, providing honest and accurate advice and support.
The Paediatric Congenital Heart Disease Service at Leeds Children’s Hospital provides services to patients and families from birth through to 16, when you will be referred to the Adult service.
Each patient is under the care of a Consultant who works with a team of doctors – registrars and ward doctors. A sister or charge nurse heads a team of staff nurses, student nurses and health care assistants.
Teenage patients will continue under the care of the Paediatric Congenital Heart Disease Service until they reach the age of 16, however the Leeds Congenital Heart Unit aim to make the transition between children and young adult as smooth as possible.
The Teen Congenital team is made up of a group of professionals from many different areas of health care, dedicated to improving the care of adult patients born with congenital heart defects.
The Adult Congenital Heart Disease Service at Leeds Children’s Hospital provides services for all patients with congenital heart disease over the age of 16 years.
This team will support patients throughout their adult life, providing support, monitoring and treatment through their regular contact with patients.
CHSF are very proud to fund the LCHU website, and it is because of you that patients and their families have this resource to help them on their journey.
Providing accurate, easily accessible and unbiased information about CHD is vital for the continued support of patients and their families.
Children’s Heart Surgery Fund’s mission is to support the Leeds Congenital Heart Unit as a world-class centre of excellence.
The support and funding for the Leeds Congenital Hearts website is a vital part of this mission, helping patients and health care professionals to get key information and resources that they can trust to be reliable and impartial.
If you want any more information about Congenital Heart Disease, the Leeds Congenital Heart Unit or Children’s Heart Surgery Fund please do not hesitate to contact a member of the CHSF team on any of the following forms of communication:
Phone: 0113 8314810
Post: Children’s Heart Surgery Fund, Suite D17, Joseph’s Well, Hanover Walk, Leeds, LS3 1AB
Alternatively you can visit our contact page here and we will be in touch.
0113 831 4810
Registered Charity Number: 1148359
Registered Company Number: 8152970